Saving Ryan - The 30-Year Journey Into Saving The Life Of A Child
$88.00
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1 in stock
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About this item
Saving Ryan is the inspiring story by physician-scientist Dr. Emil Kakkis about his journey to develop a new, first-ever treatment for an ultra-rare genetic disease called MPS. The scientist had great challenges getting grant and industry support for this rare disease despite the solid science behind doing the treatment. Simultaneously across the country, Mark Dant was in a quest to save his 9-year-old son, Ryan, afflicted by MPS for which there was no cure. Through extraordinary persistence, and with a clock-ticking on Ryan’s declining health, Mr. Dant eventually learns of Dr. Kakkis and his work, whose enzyme replacement therapy could potentially treat Ryan successfully. With renewed hope of saving his son’s life, Mr. Dant turns his attention to fundraising through his own Ryan Foundation to support the continued development of the life-saving treatment. Through an extraordinary series of obstacles and heartaches, Dr. Kakkis develops a successful treatment and ultimately gains the required support of a biotech company to complete the project. Despite early success treating MPS patients, the FDA’s abruptly changing policies caused great uncertainty as to whether the therapy would ever get approved – leading to a dramatic showdown at an FDA Advisory Committee meeting. In the end, the treatment was finally approved for all MPS patients, and ultimately saved Ryan. Ryan has been on the enzyme replacement therapy for more than 23 years. He went on to graduate college and in 2021 was married.
ASIN: B0B44S672Y
VSKU: DBV.B0B44S672Y.G
Condition: Good
Author/Artist:Emil D. Kakkis
Binding: Hardcover
Note: Any images shown are stock photographs and product may differ from what is shown.
Condition Notes: Gently used with minimal wear on the corners and cover. A few pages may contain light highlighting or writing, but the text remains fully legible. Dust jacket may be missing, and supplemental materials like CDs or codes may not be included. May be ex-library with library markings. Ships promptly!
ASIN: B0B44S672Y
VSKU: DBV.B0B44S672Y.G
Condition: Good
Author/Artist:Emil D. Kakkis
Binding: Hardcover
Note: Any images shown are stock photographs and product may differ from what is shown.
Condition Notes: Gently used with minimal wear on the corners and cover. A few pages may contain light highlighting or writing, but the text remains fully legible. Dust jacket may be missing, and supplemental materials like CDs or codes may not be included. May be ex-library with library markings. Ships promptly!
Note on Condition
Most of the items in our store are used. The item's condition grade is indicated near the bottom of the product description. If you have any questions regarding specific details of an item, please contact us. We use the following rating scale:
Books:
- Used - Very Good: Item may have minor cosmetic defects (marks, wears, cuts, bends, crushes) on the cover, spine, pages or dust cover. Shrink wrap, dust covers, or boxed set case may be missing. Item may contain remainder marks on outside edges, which should be noted in listing comments. Item may be missing bundled media.
- Used - Good: All pages and cover are intact (including the dust cover, if applicable). Spine may show signs of wear. Pages may include limited notes and highlighting. Gently used ex-library books with library stickers and markings may be classified as good. Shrink wrap, dust covers, or boxed set case may be missing. Item may be missing bundled media.
- Used - Acceptable: All pages and the cover are intact, but shrink wrap, dust covers, or boxed set case may be missing. Pages may include limited notes, highlighting, or minor water damage but the text is readable. Item may but the dust cover may be missing. Pages may include limited notes and highlighting, but the text cannot be obscured or unreadable.
CDs/DVDs/Discs:
- Used - Good: Case may be damaged or come repackaged. Disc may have up to 1.5cm marking but is in great working condition.
- Used - Acceptable: A product with extensive external signs of wear, but is in great working condition. The case may be damaged. The cover art, liner, notes, or other inclusion may be marked, or one or all of these items may be missing.
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